Principal Investigator: Yona Lunsky
The aim of this study is to co-design, implement and evaluate a national, virtual brain health education program ‘Brain Health-IDD’ for:
- aging individuals, ages 40 and older, who identify as having an intellectual or developmental disability (IDD), as well as
- their family caregivers, and
- the health and social service providers who support them.
For each of the three participant groups, adults with IDD, family caregivers, and health and social service providers, this study will:
1) Evaluate the extent of participation and satisfaction with Brain Health-IDD;
2) Evaluate changes in knowledge and self-efficacy regarding brain health including identification and management of health-related aging concerns following participation in Brain Health-IDD.
For adults with IDD and family caregivers, the study will:
3) Evaluate changes in health behaviours related to social connections, sleep hygiene, and physical activity following participation in Brain Health-IDD and whether cognitive screening is initiated;
4) Evaluate changes in physical health, mental wellbeing and resilience following participation in Brain Health-IDD.
For health and social service providers, this study will:
5) Evaluate changes made to promote brain health among adults with IDD who they support following participation in Brain Health-IDD, including whether cognitive screening is initiated.
More to come on this study