Improving Reminder Systems for Dementia: Caregiver Interviews

Full study title: Enhancing Digital Reminder Systems for People Living with Dementia through Personalized Anomaly Detection

What is the study about?

This study aims to improve a digital reminder system that helps people living with dementia with daily tasks like eating, taking medication, or getting dressed. The goal is to make the system more useful for caregivers/care partners by improving the alerts they get when the person they care for misses or delays a task, or when their habits change. Caregivers will be interviewed about what kinds of routine changes are most important to know about. The interviews will also focus on how often alerts should appear, how sensitive they should, and how detailed the messages should be. The feedback from these interviews will be used to design a more easy-to-use system in the next phase of the study.

Eligibility – Who can participate?

Participants must:
•    Be 18 years of age
•    Have been diagnosed with any type of dementia (at any stage, including mild, moderate, or severe). This does not         include mild cognitive impairment (MCI) or subjective cognitive impairment (SCI)
•    Speak and understand English
•    Be able to give informed consent
•    Be part of a caregiver-participant (person living with dementia) pair (dyad)

Caregivers must:
•    Be 18 years of age
•    Be an informal caregiver/care partner (e.g., family or friend) providing at least 30 hours of care per week
•    Speak and understand English
•    Be able to give informed consent

Time requirement

•    1 interview (approx. 60 minutes)
•    Optional follow-up session (max. 20 minutes)