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Exploring the Uptake and Impact of the Driving and Dementia Roadmap

Get in touch about this study
Study Investigator:Dr. Gary Naglie, Mark Rapoport
Site: Participate from home
Area of Focus: Alzheimer’s disease | Mild or moderate dementia | Caregivers/ Care Partners | Dementia with Lewy bodies (DLB) | Frontotemporal dementia (FTD) | Parkinson’s disease | Vascular Cognitive Impairment | Vascular dementia
Minimum Participant Age: 18+ | 30+ | 40+ | 50+ | 55+ | 60+ | 65+

Full study title: Dementia and Driving Cessation – Sub Study: Implementation Evaluation of Web-Based Driving and Dementia Roadmap (DDR)

 

What is the study about?

The decision to stop driving and the experience of transitioning to non-driving is a difficult and complex process for drivers with dementia and their caregivers/care partners. To support people living with dementia and their caregivers/care partners throughout this process researchers developed an online educational resource (toolkit) called the Driving and Dementia Roadmap (DDR) (www.drivinganddementia.ca). The DDR is a collection of resources and tools (e.g., videos, worksheets) with guided access to specific content (e.g., how to talk about driving cessation) with separate portals for people living with dementia, caregivers/care partners and healthcare providers. The researchers are interested in knowing how the DDR is relevant, useful and what impact it may have on how people approach and manage the process of stopping to drive. Participation in this research involves using the DDR for a period of two to four weeks, completing a diary (recording thoughts and impressions of the DDR) and participating in an interview that will last approximately 30 minutes to an hour.

 

Eligibility- Who can participate?

Participants must be:

  • A person living with dementia who is still driving or has stopped driving within the past two years and who speaks English.

Or

  • A family member or friend who is caring for or providing support to a person with dementia who is currently driving or has stopped driving within the past two years and who speaks English.

 

Time requirement

Using and reviewing the Driving and Dementia Roadmap as needed for two to four weeks and participating in an interview that will last approximately 30 minutes to an hour using a virtual platform (Zoom).

 

Study Video

Advances in Dementia Research Webinar- Listen to Dr. Mark Rapoport (co-principle investigator), discuss the ‘Exploring the Uptake and Impact of the Driving and Dementia Roadmap’ study in further detail:

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Disclaimer

The listing of a study on the TDRA’s Research Studies Portal is for informational purposes only. The safety, efficacy or scientific validity of the studies listed here have not been evaluated by The Alzheimer Society of Toronto (AST) or the Toronto Dementia Research Alliance (TDRA). The TDRA is an academic coalition among the University of Toronto and Baycrest, the Centre for Addiction and Mental Health, Ontario Shores Centre for Mental Health Sciences, Sunnybrook Health Sciences Centre, and the University Health Network. The information collected will be kept and guarded by TDRA. Choosing to participate in a study is an important personal decision. Before you participate in a study, you should make sure you understand the risks and potential benefits and discuss all options with your health care provider(s).