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Sep 22, 2025

World FTD Awareness Week 2025

World FTD Week

September 21–27, 2025

Understanding Frontotemporal Dementia (FTD): Beyond Alzheimer’s Disease

Not all dementia is caused by Alzheimer’s disease. Frontotemporal Dementia (FTD), also called Frontotemporal Degeneration, is the most common cause of young-onset dementia (affecting people under age 60). It occurs when the frontal and temporal lobes of the brain degenerate (brain cell loss).

FTD can lead to changes in behaviour, language, or movement, and in its early stages it is often misdiagnosed because symptoms overlap with Alzheimer’s disease, psychiatric conditions, or Parkinson’s disease.

The diseases included under the FTD umbrella are:

  • Behavioral variant Frontotemporal Dementia
  • Corticobasal Syndrome
  • Frontotemporal Dementia with motor neuron disease
  • Non-fluent variant Primary Progressive Aphasia
  • Progressive Supranuclear Palsy
  • Semantic variant Primary Progressive Aphasia

Learn more about FTD

About FTD Awareness Week

FTD Awareness Week is a chance to share knowledge, highlight research, and support individuals and families affected by this disease. TDRA and our partners are contributing to global efforts by supporting cutting-edge research, providing educational opportunities, and amplifying the voices of scientists, clinicians, and people living with dementia.

TDRA Resources on FTD

Scientist Explains Blogs

Our blog series breaks down dementia science in plain language. One post explores FTD in depth:

Frontotemporal Dementia (FTD): A disabling disease with some promise for the future

Research Spotlight

New FTD Project funded through the Sandra E. Black Award

Advances in Dementia Research Webinars

Hosted by TDRA and the Alzheimer Society of Toronto, this free, bi-monthly series presents the latest in dementia research on a range of topics. Webinars are in plain language and feature studies led by TDRA scientists. Several past sessions have included information and studies on FTD, such as:

Participate in Research

The TDRA Research Studies Portal is a free, public hub listing dementia studies led by trusted scientists across the Greater Toronto Area. All studies are approved by a Research Ethics Board and open for participation. You can browse studies on your own or complete a short form to be matched to one that fits you.

Explore FTD-focused studies on the TDRA Research Studies Portal

Stay Connected

Follow TDRA on Twitter/X, LinkedIn, and YouTube for more resources and updates throughout World FTD Awareness Week 2025.

For more information on FTD, visit the Association for Frontotemporal Degeneration (AFTD).