Patient Family Advisory Council

The TDRA’s Patient Family Advisory Council was created to bring together people living with dementia, care partners, family members, and representatives from community organizations to help integrate the lived experience voice into TDRA’s work.

With meetings taking place four times a year, the Patient Family Advisory Council members provide input on priority items identified by the TDRA Clinical Research Core of clinician-investigators that are focused and within scope. Some of the goals of this council are to:

  • Provide feedback on strategic goals, direction and research led by the TDRA
  • Facilitate knowledge translation efforts with community organizations
  • Guide the creation of educational tools intended for research study participants
  • Provide a forum for study participants and partners to provide feedback on their experience in a TDRA study.

Our current Patient Family Advisory Council members are listed below.

Leads

David Bogart, Patient Family Lead

Dr. Sanjeev Kumar, Scientific Co-lead

Dr. Carmela Tartaglia, Scientific Co-lead

Community Members

Chaitali Desai

Alicia Heaver

Paul Lea

Frank Palmer

Organization Members

Alison Li
Parkinson Canada

Patrice Lindsay
Heart and Stroke

Kari Quinn-Humphrey
Alzheimer Society of Toronto

TDRA Members

Dr. Sandra Black
Executive Director

Dr. Luca Pisterzi
Director, Strategy & Operations

Tiffany Scarcelli
Communications and Stakeholder Strategist