The TDRA’s Patient Family Advisory Council was created to bring together people living with dementia, care partners, family members, and representatives from community organizations to help integrate the lived experience voice into TDRA’s work.
With meetings taking place four times a year, the Patient Family Advisory Council members provide input on priority items identified by the TDRA Clinical Research Core of clinician-investigators that are focused and within scope. Some of the goals of this council are to:
- Provide feedback on strategic goals, direction and research led by the TDRA
- Facilitate knowledge translation efforts with community organizations
- Guide the creation of educational tools intended for research study participants
- Provide a forum for study participants and partners to provide feedback on their experience in a TDRA study.
Our current Patient Family Advisory Council members are listed below.
David Bogart, Patient Family Lead
Dr. Sanjeev Kumar, Scientific Co-lead
Dr. Carmela Tartaglia, Scientific Co-lead
Heart and Stroke
Alzheimer Society of Toronto
Dr. Sandra Black
Dr. Luca Pisterzi
Director, Strategy & Operations
Communications and Stakeholder Strategist